Good afternoon all!
Every once and a while we get to be part of something special, where we can make a difference, 16th of May, on behalf of little Gabbys parents, Simon and Vanessa Khoury, we have been invited to organize a car cruise to raise money for a rare genetic disorder called kleefstra syndrome.
Most of you have probably already seen this on Facebook.
At 11-months old, genetic testing diagnosed Gabby with a rare genetic disorder known as Kleefstra Syndrome. This presents many challenges such as developmental delay, intellectual disability, low muscle tone, and communication difficulties. There are only around 500 cases in the world, with few other cases in Australia.
Simon and Vanessa’s aim is now to set up an Australian Centre of Excellence on Kleefstra Syndrome at Sydney Children’s Hospital.
For those who wish to cruise down together, Cruzin Rodz Customs, OMCC, tuff street car club inc will be meeting at bunnings prospect, 7am, corner of gt western highway and reservoir rd, where we are expecting to depart 7:30am, and head to Governor Phillip park, Windsor, where you can simply drive thru or park up and showcase our cars, coffee and food trucks will be onsite,
We’ll be taking the following route-
Right onto Gt western highway
Left onto Cumberland
Left onto Windsor Rd
Continue through until Windsor
Then right into George st
Then left into Governer Phillip park
Entry will be $20 per car (all proceeds will go to the centre for excellence for the kids hospital for rare genetic disorders)
For those who can’t make it, the link to donate is below
https://www.fundraiseforsydneykids.org.au/.../gabby--s...
Please note that all car clubs are welcome, muscle, classic, sports, exotic, super cars, motorcycles, all we ask is that you drive in a safe manner, let’s make this a event that we’ll never forget! I hope to see you all there.
Good afternoon all!
Every once and a while we get to be part of something special, where we can make a difference, 16th of May, on behalf of little Gabbys parents, Simon and Vanessa Khoury, we have been invited to organize a car cruise to raise money for a rare genetic disorder called kleefstra syndrome.
Most of you have probably already seen this on Facebook.
At 11-months old, genetic testing diagnosed Gabby with a rare genetic disorder known as Kleefstra Syndrome. This presents many challenges such as developmental delay, intellectual disability, low muscle tone, and communication difficulties. There are only around 500 cases in the world, with few other cases in Australia.
Simon and Vanessa’s aim is now to set up an Australian Centre of Excellence on Kleefstra Syndrome at Sydney Children’s Hospital.
For those who wish to cruise down together, Cruzin Rodz Customs, OMCC, tuff street car club inc will be meeting at bunnings prospect, 7am, corner of gt western highway and reservoir rd, where we are expecting to depart 7:30am, and head to Governor Phillip park, Windsor, where you can simply drive thru or park up and showcase our cars, coffee and food trucks will be onsite,
We’ll be taking the following route-
Right onto Gt western highway
Left onto Cumberland
Left onto Windsor Rd
Continue through until Windsor
Then right into George st
Then left into Governer Phillip park
Entry will be $20 per car (all proceeds will go to the centre for excellence for the kids hospital for rare genetic disorders)
For those who can’t make it, the link to donate is below
https://www.fundraiseforsydneykids.org.au/.../gabby--s...
Please note that all car clubs are welcome, muscle, classic, sports, exotic, super cars, motorcycles, all we ask is that you drive in a safe manner, let’s make this a event that we’ll never forget! I hope to see you all there.
Bunnings Prospect, Regency Road, Prospect SA, Australia
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